The National Tourette Syndrome Association (TSA) recently rallied more than 50 of their Youth Ambassadors (YA), including Carle Place’s Steven Argenzio, for its National Advocacy Day—Trip to Capitol Hill program. This trip marks the association’s largest, most successful Advocacy Day, with TSA members representing 31 different states participating in a total of 169 meetings with 65 Senate offices, including with Senator Charles Schumer and 104 House of Representatives Offices.
Argenzio, along with the other TSA Youth Ambassadors, tackled three critical legislative issues during the Trip to Capitol Hill, including advocating for the continued appropriation of federal funding for Tourette Syndrome Public Health, Education and Research Program Partnership with the CDC, requesting legislators to join the recently reinstated bipartisan and bicameral Congressional Tourette Syndrome Caucus and garnering support for the Collaborative Academic Research Efforts for Tourette Syndrome Act, a legislation that will help establish medical centers to undertake research into the causes, treatment and preventions of TS while directing the National institute of Health to allocate existing funds to TS programs.